Mother Knows Best

MarthaAndMe
A favorite photo from several years ago, before Mother’s dementia diagnosis.

Back in January 1922 my parents were born four days apart. My father in Bell, California, and my mother in Tula, Mississippi. They would meet several years later at elementary school when my father’s family returned to its southern roots, and they married in 1948.

Although there were balloons and decorations and cake for my mother on her birthday earlier this month, she would not have known it was her day unless someone had made a fuss. Her dementia robs her of a lot, such as keeping up with dates and important life events. She sometimes thinks her parents have just died and that she wasn’t able to get to their funerals. I hate this for her, that her mind is not only failing her but is also tricking her, goading her into thinking she failed her parents. When, in reality, she was a devoted and faithful daughter until the very end, when she saw her mother and father across the bar and into the ground at St. Peter’s Cemetery in Oxford, Mississippi.

So she loses memories and facts, but she retains her grace, and her humor, and her kindness.

At Christmas I held her hand while we watched part of “Miracle on 34th Street,” which I had never seen and for some reason insist on referring to as “Miracle on 51st Street.” I left after Santa was put in the hoosegow, so it is my fervent hope that the poor man got sprung before the movie was over.

When I arrived that day at the residential facility where she lives, she was resting in her chair with her eyes closed. I sat on the edge of her bed and waited for her to wake up. When she did, she took a few seconds to stare at me with love.

“I recognize you,” she said, smiling.

Her eyes were clear and lively, not dulled as they can sometimes seem when she is having a harder time focusing and engaging. It was the same smile I have seen on her precious face countless times before, an upturn of her lips that let me know she is still my mother.

Letters from Home {“Love, Mother”}

IMG_4019The return address was my niece’s, so I assumed my precious three-year-old great nephew had sent me a card. Upon opening the envelope, I found a folded-over piece of green paper, with a thickness between typing and construction paper. 

That adorable boy made me a card. I knew I was his favorite…

Although I did not recognize the writing on the front, upon turning the page I quickly knew my mother’s penmanship, that familiar cursive that has seen me through sleep-away camp, moves to Knoxville, Washington, and Nashville, the death of my father. A little weaker looking now, but still full of heart.

I’ve been crying a lot lately. A sister tells me it’s because I’m in my fifties that everything has suddenly taken on an increased tenderness. She says one day I’ll wake up and everything will be all right, but that it might take a while. She’s just past sixty and doing great, so if she says it gets better, I choose to trust her. 

In my current condition, a teenager waiting at the bus stop, who looks like maybe she had to work a shift after school, still in her fast-food uniform at night, makes me cry. The bearded man whose truck stalled next to me at a traffic light makes me cry. He tried to crank the engine four times before sliding slightly into the intersection. The truck looked like it had been pieced together with scraps, a patchwork of parts, and in that short span of time I convinced myself the man was down on his luck and all alone in the world. Please let it start. Please let it start. Please let it start. Please let it start. And it did, just after the light turned green and before anybody started honking. We both went on our way, me thanking the universe  and driving straight down Woodmont, him puffing on his cigarette, changing lanes as he turned onto Hillsboro.

I’ve always been sensitive, mind you, but it’s more pronounced now. When I realized my ninety-two-year-old mother had made me the card, and not a toddler, the tears came fast and fell for what seemed like a full minute. Mother was diagnosed with dementia two years ago, and she lives in a residential facility for people with memory issues. My family’s Christmases are not the same as in the days of yore. Daddy’s been dead for fourteen years, and the rest of us can’t always gather together during the holidays. Chances are slim you’ll find us on Facebook in matching outfits holding mugs of steaming cocoa in front of a garland-draped fireplace. We are wandering a new land now, full of misplaced memories and far-flung relations.

There was a time not so long ago that imagining my mother sitting around a table with other aging, confused souls during “craft time,” putting stickers on colored paper while singing Christmas carols off key, might have made me blush with embarrassment, or shame, or pity. Who knows? Now I consider it a blessing.

I will treasure this green piece of paper with the snowman stickers and the slanting salutation, for it is what my mother can give. She offers what she has left of herself to me and I stand ready to receive. IMG_4021

May we all give what we can, whatever it might be, for as long as we can.

Amy Lyles Wilson

Loving Martha: On Memory and Mother’s Day

Martha
A favorite picture of Mother, taken on her last trip to the Chautauqua Institution, where we often vacationed together.

This is my family’s second Mother’s Day since Mother’s diagnosis of dementia. And it’s the first one that caused me to hesitate and wonder, “Do I send her a card?” Whereupon I immediately felt sad, and guilty, and utterly unsure of myself. Who questions whether to send their mother, a much beloved woman, a card?

Last year we were all on auto pilot, I guess, trying to keep everything as normal as possible. This year I cannot deny how much things have changed for us. I wasn’t concerned that Mother might forget reading the card minutes after she opened it. I was worried that she might have forgotten me.

It’s one of the things that scares my sisters and me most, that our mother might not know us one day. “Don’t borrow trouble,” friends advise, and I try not to, even though I’ve spent much of my life doing just that, long before things went wonky with Mother. (I won’t bore you with all the things I’ve worried about that never came to pass. You can thank me later.)  It may be that Mother will recognize us until the day she dies. But the very real possibility that she won’t pops up now and again.

I’m the youngest of three daughters. No sons. My sisters are ten and seven years my senior. As a teenager, it didn’t occur to me that I might have been a surprise. Occasionally I noticed that my friends’ parents looked younger than mine—my parents were forty when they had me—but I didn’t resent it or spend too much time trying to figure out what it might mean for my future. I liked hanging out with adults, and I grew up wanting to be older. I wasn’t scared of middle age; I longed for it. In so doing, I suspect I missed out on some youthful—and perhaps necessary—experiences. But it suited me, this way of being brought up.

“We treated you like you were thirty from the time you were six years old,” my father would joke.

On a ferry from Wood’s Hole to Martha’s Vineyard some twenty-five years ago, I asked my mother if I had been a mistake. I don’t know what made me pose the question then, but it was one of those moments of deep connection in which nothing seems off limits. We were two women on a road trip from Washington, DC, where I was living at the time, to New England. We’d toured the Rhode Island School of Design in Providence, shopped for antiques in Connecticut, and were now bound for the Black Dog Bakery.

“Of course not,” she said, facing into the wind. Then there passed one beat of silence, two. If I were telling you this story in person I would snap my fingers twice for effect.

“But if you were,” she added, turning to look me straight on, “you were the best mistake I ever made.”

I did send the card, the day before I read this, written by a woman I worked with in another lifetime, Paula Spencer Scott. She hired me for my first gig out of graduate school, working for Whittle Communications, which I count as one of the highlights of my career. Now she’s an accomplished writer and a contributing editor over at Caring.com, and she’s had family members with dementia and Alzheimer’s. When suggesting things to do for your loved one with memory issues, Scott advises, among other things, to “Keep giving cards. She might not remember opening it five minutes later, but so what? What matters is delighting her in the moment.” (www.huffingtonpost.com)

I’m learning a lot about that these days, being “in the moment.” Spending time with Mother brings it all to the here and now. When you’re holding your ninety-two-year-old mother’s hands, noticing how much the pinky on your right hand resembles hers, both now crooked with arthritis, and telling her the same story you just told her a half hour earlier, it anchors you to this very minute. It’s all we’ve got anyway, right? So I will sit, and I will listen, and I will love.