Author: Amy Lyles Wilson

I help people tell the stories they are called to tell through offering a variety of creative and spiritual practices. I facilitate workshops and retreats on such topics as creativity, grief, and spirituality. Published writer and experienced editor. Degrees in English, journalism, and theology. Lover of dogs, coffee, and all things wordsmith-y. Trained in Narrative Healthcare, Amherst Writers & Artists, Spiritual Direction, and SoulCollage®. "It's the sharing of our stories that saves us."

Dog Love {On Losing a Pet}

~ Amy Lyles Wilson ~ 1 Comment
Sloopy copy
Sloopy: The Beginning of MayBelle’s Dog Love

Sloopy was the dog of MayBelle’s young childhood, a sweet, block-headed lab who was her constant companion. When MayBelle looks at old pictures now she wonders if she had any friends at all, so often does she appear with the dog.

Then there was Savoy, and Rasta, and F. Scott. And, in her thirties and forties, Quay, who was the dog of MayBelle’s adulthood, by her side as they made their way in Nashville, just two. When Precious came along he was warned that he had to pass muster with Quay Girl or the dating deal was off. At their first meeting, Precious got down on his knees and rubbed Quay under her chin, resulting in two smitten gals instead of one.

Quay Girl was MayBelle’s heart. She was scared of thunderstorms, wary of screaming children, and shed her mixed-breed hair like tumbleweeds. She was also fiercely protective, a great traveler who never threw up in the car, and prone to trying to curl up on MayBelle’s chest long after she had grown too big for such. Her fatty tumors came, as they do sometimes in older dogs, and then it became clear she also had cancer throughout her system. MayBelle and Precious knew it was the humane thing to do to let her go at age fourteen. MayBelle cried for days.

Then came Hiram, a West Highland Terrier chosen for his low shedding properties, as Precious is allergic. Hiram was the smartest dog they’ve ever had the pleasure of tending to. Stubborn, funny, endearing, and dead at only seven and a half. MayBelle and Precious are bereft.

If you are a pet person, what is it about these creatures that crawl on our laps and steal into our hearts? Chew our furniture, demand our attention, and calm us like nothing else can?

Recently a piece about people who refer to their dogs as their children made the rounds on social media. The writer was outraged that anyone would presume to compare a pet to a child. MayBelle gets it, really she does, that dogs are not people. And as cute as she thought Hiram was, he didn’t hold a candle to her great- nephews and nieces. But seriously, people, dog love is its own thing, and if it brings someone joy to spoil his or her pooch, what’s the harm? Sure, it sort of creeps MayBelle out when she sees dogs dressed up in human clothes, but she doesn’t feel moved to criticize their owners for it (not out loud, anyway).

As for MayBelle, she’ll spend her time on articles such as this one that proclaims the health benefits of pet ownership. That said, she understands that not everyone loves dogs like she does; even some of her own family members back away at the mere mention of slobber. (MayBelle is sometimes tempted to bring up “expressing anal glands” when around these relatives but so far she has resisted the impulse.) MayBelle, on the other hand, relishes the time with her canine companions and knows she will need one with her until the end of her days. There have been times in her life, after all, when a dog was the only living, breathing creature she’d see for days. It’s hard to let go of a bond like that.

So dress up your dogs, saddle them with family names (MayBelle’s personal proclivity), spoil them with treats and toys, post their pictures on Instagram. MayBelle, for one, doesn’t mind.

Dear Wednesday: What Do You Have for Me?

~ Amy Lyles Wilson ~ 2 Comments

IMG_6362Dear Wednesday,

As you dawned this morning, I hesitated, tempted as I was to stay in bed, or maybe wear my pajamas all day. Some days are like that for me, slow to get started, peppered with doubt about if what I do in the world is enough, seeing that I’m not curing cancer or alleviating poverty or even sitting behind a desk from nine to five at a big corporation. It’s easy for me to get caught in a whirlpool of worry, first, because it’s my nature, and second, because as a self-employed, freelance creative such as myself I sometimes pay more attention to what the world might think of me than to simply doing the work I am called to do. So even though I hesitated, Wednesday, I did get dressed, I am up and working, stringing words together and helping others do the same. It may not sound like much, but it’s what I have to bring to the table. So give me what you’ve got, Wednesday. I’m ready for you.

Looking forward,

Amy Lyles Wilson

Hospital Aftermath {Every Patient Has a Story}

~ Amy Lyles Wilson ~ 2 Comments
IMG_6642
Some of the fine people who helped me at Vanderbilt. Even though they couldn’t give my malady a name, they gave me excellent care and comfort.

Not long after I returned home from the hospital, I noticed a pain in my chest, near the lower part of my ribcage.

“Maybe you pulled a muscle,” said Precious, which might have made sense if I’d actually moved since I’d been home. The most exerting (is that a word?) thing I’d done was spread a quilt over my feet and reach for the remote. Active I was not after four days in the hospital and a mandate from the doctors to stay put. They probably didn’t mean I couldn’t leave the couch, but I am a literalist at heart and I wasn’t taking any chances.

“Maybe,” I said, both appreciating my husband’s tendency not to overreact and simultaneously needing him to freak out on my behalf.

“But it hurts to breathe.”

Because we had not sought help immediately when I started feeling bad earlier in the month and thereby ended up in the hospital, we vowed not to make that mistake again. So we consulted my primary care doctor, who said she also suspected a pulled muscle but would x-ray just in case. We got word it was pneumonia before we even made it out of the building. I’ve never had pneumonia before, so I didn’t realize that it’s actually painful. Yowza. More antibiotics.

(WARNING: If you are squeamish about the female nether region, run for your life. Or just skip to the last paragraph.)

Then about a week later, I noticed an intense itching in my privates. Seriously scratchy. And my skin was flaking off like those little balls of rubber cement you roll up after you’ve been acting a fool with the arts and crafts supplies. It made me want to cry out like when you were a kid and your mother ripped the Band-Aid off the abrasion you got when the Doberman from down the street yanked you from your banana seat bike and you fell into a puddle of gravel. Yes, like that. I was scared to look, but I did, and then I was really scared and really grossed out. I grabbed some antibacterial cream and started googling.

Shortly thereafter I convinced myself I had Norwegian Scabies (FOR THE LOVE OF ALL THAT IS HOLY DO NOT LOOK THIS UP!) and that I had gotten it from the hospital, having already suspected they didn’t change my sheets often enough.

For the next day or so I continued to slather creams of varying consistencies on the affected areas, hoping my discomfort would go away. It did not.

Back to the same walk-in clinic where we had gone when this saga first started and we were told I had the white blood cell count of someone who was receiving chemotherapy and that I needed to get to the emergency room immediately.

I’m not a sexist (gender-ist?) about doctors, having had both male and female along the way, but I must say I did request a female this time around. I told her about having been hospitalized for neutropenia and then added, “Something’s wrong,” I said. “You know, down there.” I lowered my head for effect.

“I’m pretty sure it’s Norwegian Scabies.” I think I was whispering.

“Let’s take a look,” she responded, snapping on a pair of blue latex gloves. She might have been smirking but I can’t be sure because I was too busy planning my lawsuit against the hospital for having unsanitary conditions that resulted in my contracting this rare and embarrassing disease to notice her facial expression.

One beat, two.

“This is easy. It’s a yeast infection, most likely as a result of all those antibiotics you’ve been on for the low white cell count.”

“You mean it’s not Norwegian Scabies?”

“No,” she said. “Whatever that is. I’ll give you a prescription for some cream and you’ll be fine.”

She did and I was, although for weeks afterward I continued to wonder about each ache and every itch. Eventually, though, I stopped obsessing and gave up googling. We’re all healthier for it.

And Then a Crow Ate a Goldfinch. {Every patient has a story.}

~ Amy Lyles Wilson ~ 2 Comments

img_6788I lose it about 4 a.m. on Wednesday. I think I scare the nurse a bit, for it must be like seeing his mother break down. That’s how young he is. And he is great at his job. Also, a doll.

“I need to draw more blood,” he says. “Another culture.”

This means taking a good bit of blood. How do I have any to spare? I start to cry.

He stands in the doorway a few seconds, unsure.

“I just need a minute,” I say, grabbing for some tissues. “I don’t think it’s all that strange for me to feel frustrated.”

It’s as if, as usual—I’ve done it all my life so I shouldn’t be surprised—I’m seeking permission. Approval.

“Of course,” he says. “I know it’s hard. We’ll get you through this.”

Oh, those words, precious boy. He doesn’t say they’ll cure me, or that it will be easy, or that he has answers. Just: We’ll get you through this. Pardon the cliché but it is just what the doctor ordered. (Or should have.)

Later Wednesday morning I feel a bit better, but there is still no diagnosis. Some big things have been ruled out. The hematologist tells me this happens more often than you might think, that an infection invades your body and you never know its source.

Then, toward evening, I see a crow eating a goldfinch. Right there on the ledge outside my window. I notice little bits of fluff wandering around the sky, and I see the crow picking at something at its feet. When it turns over its prey, there is a brilliant flash of yellow. I am mesmerized, trying to decide if this is a sign of some sort for me—the cycle of life and death and all—or merely nature doing its thing. And if it is the cycle of life and death, which will it be for me? I am sad and mesmerized by nature all at once.

I can’t get to my phone to take a picture and while I hear you saying, “Bless her heart. She was probably hopped up on good drugs and just imagines she saw a crow eating a goldfinch,” let me remind you that when I ask for some calming medication, I am given melatonin, people, not anything mood inducing. (And when I tell the nurse the melatonin didn’t really do the trick, I am given MORE melatonin.)

I decide not to take the crow incident as a sign and instead say a blessing of gratitude for all that nature–and man–is capable of. I go back to watching Gilmore Girls. I didn’t follow the series when it first aired and I am quickly becoming hooked. Hooked, I tell you. I want to dress like Lorelei (sp?), drink coffee out of bowl-like mugs, and matriculate at Yale. Somebody get me out of here…

My dinner is pretty tasty, and, ta da, is actually what I ordered. (Several times my order was not what I ordered and that was disappointing. Not a big deal, but when what you have to look forward to is a biscuit with turkey sausage and you don’t get it, it can seem like a much bigger deal than it would on a regular day, like when you don’t think you’re dying and there isn’t a crow eating a goldfinch outside your window.)

When I wake up on Thursday morning I am covered in sweat. Instead of being grossed out, I am delighted, as I think it means I am on the mend.

“I think my fever broke,” I text Precious.

“On my way,” comes his reply.

Several hours later the doctors tell me my white count is on the upswing, my fever is down, and I’m free to go. Still no diagnosis, and oral antibiotics and follow-up checks will be necessary. I’m a little scared to leave, actually, what with the not knowing and all. But apparently if I want to wait until I get some sort of definitive answer, a reason, I will be hospitalized for a very long time.

Although I have never believed in a puppeteer kind of God, a deity that picks and chooses who will suffer and who will flourish and decides which of us needs to learn a lesson and which folks can afford to skip class, I must say I’m trying to see this experience as a learning opportunity for me, in that I have long been one who wanted to figure everything out, to have a cause and effect that I could grasp. To understand. Even if it was bad, I’d say, I want to know. And now I don’t. I am being called to lean into the mystery, so lean I shall.

 

From the ER to the Eighth Floor {Every patient has a story.}

~ Amy Lyles Wilson ~ 8 Comments

In these posts I’m looking back on a recent hospital stay. I seem to be fine now, and am writing my way through the experience for therapeutic purposes.–ALW

I don’t see Doctor X again. Nor do I meet again the woman who introduces herself to me, I think, as my “case manager.” Maybe she was just supposed to manage me in the ER? (My entire stay was from Monday-Thursday.)

The two nurses I have while in the ER are fabulous, and for a while this amazing thing I think one of them refers to as a “butterfly” works wonders so they don’t have to stick me every time they need to draw blood or give me antibiotics. The one on my left arms lasts most of Monday and then another one is inserted in my right arm. Eventually neither of them allows for drawing blood, but they both continue to work for intravenous delivery of antibiotics, which I’m given four hours on and four hours off. Someone takes me for a CT of my head (“to see if anything has crossed the membrane”) and chest. The young female doctor I’m falling in love with tells me they may have to do a lumbar puncture but it won’t be today and they won’t do it unless absolutely necessary. Part of me thinks I can’t survive that, while most of me knows I will have to do whatever is necessary to see this through. I hope I am stronger than I look.

The night nurse reminds me of a dear friend of mine, a woman I’ve known only for two years but it might as well have been a lifetime for the connection we share. The nurse is kind and funny and tells great stories. She is tender and forthright and has an air that radiates calm and competency. I relax a little feeling the spirit of my friend Leila surrounding me, for Leila is one of the most grounded people I know and I’m hoping I can grab on to her faith (in God? in medicine?) across state lines in Florida while mine is under assault in Tennessee.

img_6630I watch television, delighted to find a channel that runs Murder She Wrote, one of my personal favorites. And imagine my glee when I see Mannix make a guest appearance!

I do not sleep.

I’m moved to a room about 6:30 Tuesday morning. It might as well be the Ritz, as it has a window and its own bathroom, meaning I no longer have to ask for the IV to be stopped, gather the flapping ends of my gown around me, and pad to the bathroom in the ER common area every time I needed to pee. (This is another thing that I realize makes my hospital stay not so awful. I can get to the bathroom myself, feed myself, etc. Also, the fact that I am cognizant enough to ask questions along the way and understand, sort of,  what is being done to me makes everything better.)

It’s shift change time, and I’m not sure but I think this might be why a couple of things get overlooked, such as offering me breakfast and doing a proper “intake,” which the day nurse says repeatedly she needs to do but never does. (One of the ER nurses gave me graham crackers and peanut butter on Monday, but I haven’t eaten a meal since Sunday evening.) I wonder if the intake cues several things, such as getting the patient something to eat, getting the patient a clean gown, and providing said patient with toiletries. It’s Wednesday before I get a new gown and toiletries, which Precious has been retrieving from home for me. Not a big deal, I realize, but when you are scared, and in pain, and just want some semblance of normalcy, a little deodorant goes a long way. I’m not sure why I don’t think to ask about this. I’ve only been hospitalized overnight once before, some thirty years ago, so maybe I don’t realize I have the right to request such. Or maybe I am too preoccupied, you know, with matters of life and death. Mine.

Hallelujah! The two perfectly lovely doctors from the ER are on my primary care team and they tend me throughout. The young woman I mentioned above, and a young man, both of whom are compassionate, professional, thorough without being alarmist, willing to answer any question I can conjure. They are funny, and personable, and I want to write their parents to tell them what good jobs they did with their children. They treat me with respect without making me feel I’m old enough to be their parents. I had no idea I would see familiar faces once I was moved to a room, and it makes a world of difference for me. (My mother, who was hospitalized often in the last years of her life in Mississippi, never had that experience of consistency in her care. It matters.)

“We still don’t know what’s causing your white blood cells to be so low,” they continue to say. “We’ve ruled out some things, but we’re running lots of tests.”

More tests, more questions, more tests, more questions.

Fever up and down. Mostly up.

img_6614And then, lunch! What a gift to be handed a menu and told I can order what I want as long as I follow the diet restrictions imposed by my condition. I can’t have fresh fruit and vegetables, as a precaution against additional infection. The menu provides me with several options, and I’m thankful I have choices. Again, when so much has been taken out of your control, any decision you get to make seems bigger than it might under normal circumstances. (The food throughout my stay is good, tasty enough, although my orders rarely match my approved requests.)

img_6624That night I ask for something to help me rest and am given melatonin. It does not do the trick, but it may be that I am simply too wired to sleep. So I look out the window at the other wings of the hospital, row after row of rooms, window after window, some with lights on, others darkened. Each one with a story.

In that window there, is a baby being born? What about next door, is someone losing his life?

I watch the LifeFlight helicopter come and go, each landing, each takeoff, a story.